PKU
News for Oct 2025
Developments in UK Pharma, and why they matter for those with PKU or brain conditions. Another new PKU treatment. Exciting developments in concussion detection - and much more
Brain Injury
Articles on brain injuries and recovery written from the perspective of a brain injury survivor. Content includes brain bleeds, concussion, and post-concussion syndrome.
News
Sept 2025
News for September 2025: PKU App now free, More help for long-term conditions, New PKU podcast, Four new recipe sites to try - and much more. Subscribe today for free.
Brain Injury
Endurance training with PKU & brain injury
Living with PKU means juggling the restrictions of a low-protein diet therapy with the demands of every day metabolism. Throwing in an endurance challenge means I need to double-down on ensuring I’m getting enough energy and nutrition without exceeding my protein limit.
News
July 2025
July 2025 news: Men's voices in healthcare, EU approves new PKU treatment, New Books for PKU kids, & Neuroplasticity in brain injury recovery.
News
June 2025
First CRISPR treatment for a rare genetic disease, Cost of brain injury to the economy, Low-Protein recipe of the month, and much more...
News
May 2025
Could you walk 24 miles (39 km) in one day? Or try a different challenge this PKU awareness month. Plus, a low-protein recipe, and brain injury on stage.
News
April 2025
Packed with Easter tips, ideas for school holiday baking, new brain injury research, and a chance to report on the NSPKU conference.
Brain Injury
Living with Mild Brain Injury
“Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.” Dr Neil Parrett. Consultant Clinical Psychologist (Neurorehabilitation)
News
March 2025
Spring news: new UK patient guides, updates on the NSPKU conference and activity weekend, plus insights into brain injury rehab. Also, my Low Phe ABC book is almost here! Read more & join the conversation.
News
Community Spotlight February
New PKU books, home phe monitoring update, Mental Health Insights & Rare Disease Day, 28 February 2025
News
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News
Brain Injury News, June 2024
- A brain injury manifesto for the UK election - Two research opportunities - Share your views on medicine shortages. - And tell the government what you think of PIP