Low Phe ABC

Update: September 2026 I created this book to give PKU families a joyful way to learn about low protein foods together. I have since learned that the protein and Phe values for figs, one of the foods featured, are less reliable than the sources I originally relied on suggested. Values vary between data sources, and dried figs are considerably higher in protein than fresh.

Because a book like this only works for as long as its information stays safe to rely on, I have decided to withdraw it from sale rather than risk families being misinformed or their protein allowances being put at risk. This was not an easy decision, but it was a straightforward one: I would rather withdraw a book than stand behind information I can't guarantee.

Food composition data can change and varies between sources — always check with your dietitian. Thank you to every family who welcomed this book into your homes. If you have any concerns about your copy, please contact me.

A Low-Protein Alphabet for PKU

Pauline O'Connor is an author of fiction and non-fiction, and a patient advocate. She campaigns for brain injury survivors, and for those diagnosed with the rare disease, Phenylketonuria (PKU). A brain injury ended Pauline’s successful careers in winemaking and education. Now, she pursues her passions for advocacy and writing.

Accessible, fun low‑protein book for PKU kids

Specially crafted for children with PKU, these books weave education and entertainment. The Low Phe ABC Book introduces protein‑free foods in bright illustrations, and the FREE colouring companion invites playful learning—ideal for family engagement.

"A wonderful resource" Prof. Anita MacDonald

• Paperback ISBN: 9781739635657
• Ebook ISBN: 9781739635640 ASIN:B0F99V1754

Who it's for:

• Children aged 0-5 with PKU, or a low-protein diet therapy
• Parents, teachers, and family members
• Clinics and paediatric dieticians

What’s inside:

• ABCs with protein‑free food examples
• Bonus coloring pages for creative exploration
• Reinforces dietary learning through play
• Plus! A printable colouring book option so you can print as many copies as you like.

Author insight:

"I hope these books show PKU families just how colourful, safe food can be."

Praise for the Low Phe Series:

• "This will be a wonderful resource for us to use...The children will enjoy colouring this booklet in.” Prof. Anita MacDonald.

Low Phe Series – Frequently Asked Questions

What is the Low Phe series?

This is a series of fun, educational books for children with Phenylketonuria (PKU), designed to support early learning and confidence while managing a low-protein diet. All foods in the books are considered protein-free for PKU in the UK.

What books are included in the series?

• Low Phe: A Low-Protein Alphabet for PKU is a full colour ABC reader.
• Low Phe Colouring: Low-Protein Colouring for PKU is a black and white version of the ABC reader designed for colouring in.

Who are these books for?

Children living with PKU (typically ages 0–5), their parents, teachers, and siblings. They are also suitable for nursery or school settings to promote inclusion and understanding.

What do the books teach?

The alphabet book introduces letters using low-protein foods and colourful images. The colouring book reinforces these foods through interactive play. Both support dietary learning and positive PKU food identification.

Are they medical books?

No. The books have been checked by UK dieticians but they are not medical advice — they’re age-appropriate tools to introduce PKU in a fun and reassuring way.

Are they suitable for children newly diagnosed with PKU?

Yes. They’re an excellent resource for early education and helping children feel seen and supported from the beginning. All foods in the books are considered protein-free for PKU in the UK.