Happy Birthday to Living with PKU
Living with PKU hit NUMBER 1 in the Genetics hottest releases list. It also made the top 6 bestsellers list, up there with Richard Dawkins and Adam Rutherford.
PKU
Articles on PKU (Phenylketonuria) and low protein diets; including research, treatments, new products, and more.
Low Protein
The genetics of PKU
A simple run down of the genetics of PKU, and how that relates to sapropterin testing. I’m going for the “Explain like I’m five” version here!
Recipes
PKU Raisin Scones
Tasty, fluffy, protein-free raisin scone recipe - with pictures and baking tips for people on Low Protein diets like PKU, Phenylketonuria.
Recipes
Cucumber and avocado smoothie
Something a bit different for hot weather and PKU meals. I came across this as a recipe for a ‘no-cook’ soup but in both temperature and texture it is best described as a smoothie. 2g protein, Low Protein
Recipes
Fennel and 'cheese' salad
PKU and heatwave friendly 'no-cook' recipe fennel and 'cheese salad'. Can be made phe-free, low-protein, or add protein as needed.
Recipes
Protein-free Carrot Cake
A protein-free carrot cake recipe with picutures. It is great for PKU celebrations or the occasional treat. (0.45g of protein in the entire cake)
Brain Injury
Newsletter 8 - January
How a new perspective might help you in 2023. Another new PKU treatment(!), & helping with PKU research. Plus, 5 ways to wellbeing through kindness. (Jan 2023 newsletter)
Conferences
Campaign update at NSPKU2022.
Liz Twist MP spoke to the conference in her role as Chair of the All Party Parliamentary Group (APPG) for PKU. She began by extolling the difference which Sapropterin makes for those who respond, but she also acknowledged the need to work for those who do not respond.
Review: five Sphere flavours
Vitaflo Sphere have two new, and frankly delicious, flavours in their supplement range. I tried all five flavours in one day and took notes for you.
New book: Living with PKU
No one’s PKU is quite the same, yet we can support each other. I don’t pretend to have all the answers, but this book contains what I know from forty years of Living With PKU
ShareYourStory
Gyms and PKU
Like with everything, going to the gym should be fun and rewarding... it just takes a bit of time and care - like anything with PKU!
ShareYourStory
Moving with PKU: Get moving!
In his first blog for PigPen.Page, Soheb discussed the benefits and potential pitfalls facing a PKU-er moving out of home for the first time. Part two looks at practicalities of moving and how to prepare.