Recipes
YouTube soft launch
My first YouTube video! And your feedback would mean the world to me. This is brand-new territory for me, and I want to get it right.
Articles on low protein diets, low phenylalanine, and PKU (Phenylketonuria)
Recipes
My first YouTube video! And your feedback would mean the world to me. This is brand-new territory for me, and I want to get it right.
ShareYourStory
Maddison shares 'One piece of advice I’ve always had is don’t let PKU define YOU as a person. You are more than your PKU!'
Recipes
I once knew a Frenchman who insisted that pasta cooked without salt and oil was an abomination. I tried it, and can confirm that both PKU and non-PKU pasta benefit
PKU
Updates from the NSPKU 2026 conference: Future PKU treatments (sepipapterin, kidney treatments), Home Blood Phe Monitoring, and research updates on Phenylketonuria.
Newsletter
April Update; Catch up on the PKU, Brain and mental health stories behind the turbulence of March. Plus, ideas to refresh PKU food.
Newsletter
Rare Disease Day Reports, PKU GI research, Low Protein Pancake recipes, brain injury app trials, and a book sale ending 7th March!
Recipes
An easy low protein recipe for reliable PKU pancakes: photos & video guides :) Ideas for protein-free, and measured protein toppings.
News
From new breakthroughs to Christmas tips and recipes, here are the PKU and Brain stories worth knowing about in December 2025.
Recipes
This recipe makes four individual, low protein Wellingtons. They are great for Christmas or Thanksgiving, yet are so easy that I’ve been making them as a mid-week dinner.
Low Protein
Here’s what I discovered about Meta Healthcare's new-to-UK low-protein Salty sticks (breadsticks) and Pizza crackers. Plus a kitchen trial of a new chicken-substitute.
Recipes
October: a time for warming oven dishes, and keeping things simple. Here are two Easy, low-Protein, PKU friendly dishes to try this autumn.
PKU
Insights from Prof. MacDonald’s talk at NSPKU 2025 — Sepiapterin, JNT-517, and more — and what they might mean for adults living with PKU.