ShareYourStory
Share Your Story
Every story adds to our shared understanding of PKU. The post can be anonymous, we don’t have to share your name. Join our community and share your story today
Writing
Articles on writing craft, building a career in publishing and the many lessons learned as a new author.
The Memory: we that are left
A short story in memory of those who fought, released freely on the 80th anniversary of VE Day. From "The Red Hat Stories" by Pauline O'Connor.
News
April 2025
Packed with Easter tips, ideas for school holiday baking, new brain injury research, and a chance to report on the NSPKU conference.
Brain Injury
Living with Mild Brain Injury
“Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.” Dr Neil Parrett. Consultant Clinical Psychologist (Neurorehabilitation)
News
March 2025
Spring news: new UK patient guides, updates on the NSPKU conference and activity weekend, plus insights into brain injury rehab. Also, my Low Phe ABC book is almost here! Read more & join the conversation.
Publishing paths
My experience of traditional and self publishing, and the lessons learned! This is a tough industry, and the average author’s income is declining.
News
When the baby is not OK
A memoir of Motherhood and PKU. “When the Baby Is Not OK: Hopes & Genes” by Jennifer J. Brown
News
January 2025
Book ideas to start your 2025 well; Fad diets in January; back to basics with a PKU bread maker recipe.
Writing
Low protein books
A selection of low protein books for adults and children. Gift ideas for those new to PKU and inherited metabolic disorders. Plus, a free gift for subscribers.
Hello there
Welcome to the PigPen community — a place for connection, insight, and hope through science and storytelling. I’m thrilled to have you on board.
The Red Hat Stories
An enticing collection of short stories which explore the connections between strangers on the streets of London.
News
Kickstarting The Red Hat Stories
This short story anthology is my first fiction book, and the choice to try a Kickstarter was strategic. The Kickstarter campaign successfully funded! Grab your copy now