News
March 2025
Spring news: new UK patient guides, updates on the NSPKU conference and activity weekend, plus insights into brain injury rehab. Also, my Low Phe ABC book is almost here! Read more & join the conversation.
Low Protein
Articles on low protein diets, low phenylalanine, and PKU (Phenylketonuria)
What is PKU?
Explaining PKU, Phenylketonuria, a rare inherited metabolic condition treated by a low-protein diet.
News
Community Spotlight February
New PKU books, home phe monitoring update, Mental Health Insights & Rare Disease Day, 28 February 2025
News
When the baby is not OK
A memoir of Motherhood and PKU. “When the Baby Is Not OK: Hopes & Genes” by Jennifer J. Brown
Conferences
Metabolic Support UK
Similar to the NSPKU, MSUK was started by a family trying to find information about their child’s rare disease. However, MSUK encompasses all IMD’s, of which PKU is the most common
News
Share your challenges of Living with PKU
Take part in paid market research on the challenges of living with PKU. The online session is 90 minutes, and you will receive £100 compensation for your time.
Low Protein
PKU Mac & Cheese
An easy, low-protein macaroni and cheese recipe, with options for adding more protein if your PKU allows.
News
January 2025
Book ideas to start your 2025 well; Fad diets in January; back to basics with a PKU bread maker recipe.
Recipes
Ginger and dark chocolate cookies
Delicious, chewy ginger and chocolate cookies with an orange hint. These are low protein and protein-free options for PKU and other restricted diets.
Eating out with PKU
Eating out can be a challenge for those of us following a low-protein (or PKU) diet. Here are some tips and recommendations.
Writing
Low protein books
A selection of low protein books for adults and children. Gift ideas for those new to PKU and inherited metabolic disorders. Plus, a free gift for subscribers.
PKU at Christmas
Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included PKU and low protein menu suggestions & recipes.