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PKU Day 2026

PKU Day 2026
Pauline O'Connor YouTube channel

Hullo there,

The 28th of June is International PKU Day:  a chance for the Low Protein community to raise awareness of Phenylketonuria and allied inherited metabolic conditions, like Tyrosinaemia.

To mark it, I am launching my YouTube channel: youtube.com/@PaulineAuthor

It is a space for practical Low Protein recipes, stories, and conversations about PKU, brain health, and low-protein living. You can start with the welcome video to get a feel for what is coming.

Pauline O'Connor YouTube channel

I am also featured on the Beacon for Rare Disease website this week, with a blog post about navigating adulthood with PKU.

And a quick milestone note: this month marks four years since Living with PKU was published, and one year since the Low Phe ABC children’s book came out. You can find both on my books page.

Pauline’s books on PKU, & Brain Injury, plus fiction works
Pauline writes about real lives shaped by rare disease and resilience. Stories that turn science into understanding and action.

If you find value in my newsletters, please share them. You can find my books at all major retailers. Your support means a lot, and your feedback shapes what comes next. Do get in touch!
Cheers,
Pauline

P.S. If you watch one thing, start here: welcome video

Newsletter #50