News
Kevin Alexander receives the 2026 Sheila Jones Award, I've refreshed my low protein Thanksgiving and Christmas tips, and Headway explains how to fight the brain injury winter slump. Plus: recipes to practice now before the holidays.
Newsletter
October is a massive month in the PKU world, with EU and UK conferences. Meanwhile, I'm heading to Japan! Plus audiobook, 'fish' fingers & more
Brain Injury
Why your brain is built for change, and what that means after trauma.
Newsletter
A new supplement, a PKU mental health course, conference dates for autumn… Plus! Help with a new routine, and 4 recipes for school night dinners.
Newsletter
From PKU surveys to brain injury tips and recovery, including Low Protein summer salads and a book sale - here is your August roundup of what matters in the rare disease and brain injury communities
News
I'm excited to introduce my new YouTube video series and share some book chapter excerpts with you all. But first, let's catch up on the latest PKU and brain injury news.
Hullo there, The 28th of June is International PKU Day: a chance for the Low Protein community to raise awareness of Phenylketonuria and allied inherited metabolic conditions, like Tyrosinaemia. To mark it, I am launching my YouTube channel: youtube.com/@PaulineAuthor It is a space for practical Low Protein recipes,
Brain Injury
A brain injury can sometimes cause problems with temperature regulation, making it harder for survivors to control their body temperature.
Newsletter
June 2026 roundup: PKU news, menstruation study, rare disease advances, brain injury AMA with Dr Putrino, plus PigPen recipes & stories
Recipes
My first YouTube video! And your feedback would mean the world to me. This is brand-new territory for me, and I want to get it right.
ShareYourStory
Maddison shares 'One piece of advice I’ve always had is don’t let PKU define YOU as a person. You are more than your PKU!'
Recipes
I once knew a Frenchman who insisted that pasta cooked without salt and oil was an abomination. I tried it, and can confirm that both PKU and non-PKU pasta benefit