Brain Injury
Living with Mild Brain Injury
“Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.” Dr Neil Parrett. Consultant Clinical Psychologist (Neurorehabilitation)
Latest
The origins of PKU treatment
Prof. Anita MacDonald presented the origins of PKU treatment on an afternoon of PKU legends, both past and present.
Low Protein
Financial Support
Information on financial support for those in the UK with Inherited Metabolic Disorders (IMDs). Including links to information for support other countries (below article).
News
March 2025
Spring news: new UK patient guides, updates on the NSPKU conference and activity weekend, plus insights into brain injury rehab. Also, my Low Phe ABC book is almost here! Read more & join the conversation.
What is PKU?
Explaining PKU, Phenylketonuria, a rare inherited metabolic condition treated by a low-protein diet.
Publishing paths
My experience of traditional and self publishing, and the lessons learned! This is a tough industry, and the average author’s income is declining.
News
Community Spotlight February
New PKU books, home phe monitoring update, Mental Health Insights & Rare Disease Day, 28 February 2025
News
When the baby is not OK
A memoir of Motherhood and PKU. “When the Baby Is Not OK: Hopes & Genes” by Jennifer J. Brown
Conferences
Metabolic Support UK
Similar to the NSPKU, MSUK was started by a family trying to find information about their child’s rare disease. However, MSUK encompasses all IMD’s, of which PKU is the most common
News
Share your challenges of Living with PKU
Take part in paid market research on the challenges of living with PKU. The online session is 90 minutes, and you will receive £100 compensation for your time.
Low Protein
PKU Mac & Cheese
An easy, low-protein macaroni and cheese recipe, with options for adding more protein if your PKU allows.
News
January 2025
Book ideas to start your 2025 well; Fad diets in January; back to basics with a PKU bread maker recipe.