News
January 2026
Resolutions: One thing at a time! Advice for managing PKU; Celebrities and 'brain holes'?; Please help with adult research; Dates for the diary; Plus: find ALL of my Low Protein recipes.
Latest
News
Twixtmas reading, 2025
18 reading suggestions to curl up with while polishing off leftovers. The articles include PKU research and updates; Rare Disease and advocacy articles; then Brain, neurological, and mental health reading.
News
December 2025
From new breakthroughs to Christmas tips and recipes, here are the PKU and Brain stories worth knowing about in December 2025.
Conferences
NSPKU in Wales 2025
From the psychology of living with PKU to new treatment pathways and the fight for fair access, highlights from this year’s NSPKU Conference in Wales.
Recipes
Mushroom & Jackfruit Wellingtons
This recipe makes four individual, low protein Wellingtons. They are great for Christmas or Thanksgiving, yet are so easy that I’ve been making them as a mid-week dinner.
Advocacy
RareSummit 25
My first RARESummit: What I Learned from a Day of Rare Voices. CamRARE’s 2025 event reflected on “A decade of impact. A future of possibilities”.
Low Protein
Meta Healthcare’s new low-protein products
Here’s what I discovered about Meta Healthcare's new-to-UK low-protein Salty sticks (breadsticks) and Pizza crackers. Plus a kitchen trial of a new chicken-substitute.
News
Nov 2025
AI and a golden age of medicine, more on UK Pharma, the latest in PKU treatments, new neurological rehab guidelines, and much more.
Recipes
PKU friendly recipes to try in October
October: a time for warming oven dishes, and keeping things simple. Here are two Easy, low-Protein, PKU friendly dishes to try this autumn.
PKU
What’s in the treatment pipeline
Insights from Prof. MacDonald’s talk at NSPKU 2025 — Sepiapterin, JNT-517, and more — and what they might mean for adults living with PKU.
PKU
News for Oct 2025
Developments in UK Pharma, and why they matter for those with PKU or brain conditions. Another new PKU treatment. Exciting developments in concussion detection - and much more
Recipes
Four quick ‘school-night’ dinners
Quick, easy dinners that satisfy both the PKU diet and your taste buds.Three recipes are Phe-free; the fourth has 2.5 g Phe per adult portion, with optional additions if you need more.