April 2026
PKU news
NSPKU Food lists 2026
The NSPKU have plenty of resources for those of us with PKU, including downloadable photo books of UK foods, with protein amounts. These include school lunch box and snack ideas, along with themed books on seasonal treats or specific cuisines.
PKU in Canada, no longer forgotten
Tristin at PKU Notebook reports on “two announcements that, taken together, send a clear message: phenylketonuria is no longer a forgotten disease.”
PKU conferences reminder
The NSPKU conference in mid-April is a sell-out.
I’ll be co-hosting the PKU Adult workshop with Paul McKeller, please join us for the 10am session!
Their next meeting will be in Northern Ireland, date not announced yet.Other conference dates:
- NPKUA conference in Chicago. The NPKUA’s community conference will run from Thursday, July 16 through Sunday, July 19 in Chicago. Find out more at: NPKUA Conference.
- ESPKU conference in Copenhagen. The 40th E.S.PKU Conference #ESPKUConference2026 will take place in Copenhagen, Denmark 🇩🇰 from 22 to 25 October 2026! Booking not yet open, I’ll report when it is available.
Buy me a cuppa ☕ — your support helps keep this blog free, and helps to me write about PKU, brain injury & mental health.
Brain news
Seek help early on for brain injuries
I include this article because my long recovery after brain shows how important it is to get help early. Fellow brain injury survivor and local Headway manager Jamie Higgins discusses how and where to find help.
UK looks back at Covid
The COVID-19 Inquiry published its third report on Covid, which looked at the impact that the pandemic had on healthcare systems, patients, and healthcare workers. It is a difficult read and noted that Many patients felt lost, confused and isolated. Find the report here.
Headway survey for Brain Injury week
Headway’s Action for Brain Injury Week (ABI Week) will take place 18–24 May 2026. This year, they are looking at Isolation after brain injury. There is time to feed into this campaign by completing their surveys.
PigPen news & recipes
March was a busy time off-line for me, as I delved into my next writing project: a fiction trilogy! Any lovers of Gothic sci-fi out there, get in touch. 🙏
Meanwhile, over on the blog I shared my thoughts on navigating change, chronic illness, and daily energy limits. And, I’ve been enjoying PKU cheese scones in the spring sunshine ☀️.
Pauline
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Cheers,
Pauline
Newsletter #47
Member discussion