Articles on PKU (Phenylketonuria) and low protein diets; including research, treatments, new products, and more.
ShareYourStory
The day my baby was born, as well as all the emotions that I felt on finally getting to meet my baby girl, I was so relieved that I had done it. All that hard work I put into my diet for over 2 years had been worth it, she was perfect!
ShareYourStory
I’ve never struggled too much with my diet... What has affected me is the mental state the diet puts me in. The constant weighing and measure of every option before me. The anxiety of it.
ShareYourStory
Every story adds to our shared understanding of PKU. The post can be anonymous, we don’t have to share your name. Join our community and share your story today
ShareYourStory
Genomic testing isn’t just about science—it’s about people. This blog explores the emotional rollercoaster of the UK Sapropterin rollout and why patient voices matter.
Recipes
An easy low protein recipe for reliable PKU pancakes: photos & video guides :) Ideas for protein-free, and measured protein toppings.
News
A free workshop on Living with PKU; Genetic medicine, personalised treatments, and PKU; Campaigning for change in strokes and brain injury support; and What is the PKU injection (Palynziq)?
PKU
Also known as Pegvaliase, or PAL, or PEG-PAL. PAL stands for Phenylalanine Ammonia Lyase, which is a plant enzyme with breaks down phe. This is why it has been developed as a treatment for those of us with PKU.
News
Resolutions: One thing at a time! Advice for managing PKU; Celebrities and 'brain holes'?; Please help with adult research; Dates for the diary; Plus: find ALL of my Low Protein recipes.
News
18 reading suggestions to curl up with while polishing off leftovers. The articles include PKU research and updates; Rare Disease and advocacy articles; then Brain, neurological, and mental health reading.
News
From new breakthroughs to Christmas tips and recipes, here are the PKU and Brain stories worth knowing about in December 2025.
Conferences
From the psychology of living with PKU to new treatment pathways and the fight for fair access, highlights from this year’s NSPKU Conference in Wales.
Recipes
This recipe makes four individual, low protein Wellingtons. They are great for Christmas or Thanksgiving, yet are so easy that I’ve been making them as a mid-week dinner.