Newsletter
October 2026
October is a massive month in the PKU world, with EU and UK conferences. Meanwhile, I'm heading to Japan! Plus audiobook, 'fish' fingers & more
PKU
Articles on PKU (Phenylketonuria) and low protein diets; including research, treatments, new products, and more.
Newsletter
September 2026
A new supplement, a PKU mental health course, conference dates for autumn… Plus! Help with a new routine, and 4 recipes for school night dinners.
Newsletter
August 2026
From PKU surveys to brain injury tips and recovery, including Low Protein summer salads and a book sale - here is your August roundup of what matters in the rare disease and brain injury communities
News
July 2026
I'm excited to introduce my new YouTube video series and share some book chapter excerpts with you all. But first, let's catch up on the latest PKU and brain injury news.
Newsletter
June 2026
June 2026 roundup: PKU news, menstruation study, rare disease advances, brain injury AMA with Dr Putrino, plus PigPen recipes & stories
Recipes
YouTube soft launch
My first YouTube video! And your feedback would mean the world to me. This is brand-new territory for me, and I want to get it right.
ShareYourStory
You are more than your PKU!
Maddison shares 'One piece of advice I’ve always had is don’t let PKU define YOU as a person. You are more than your PKU!'
Recipes
Tips for PKU and non-PKU pasta
I once knew a Frenchman who insisted that pasta cooked without salt and oil was an abomination. I tried it, and can confirm that both PKU and non-PKU pasta benefit
Newsletter
May 2026
A bumper bank holiday edition: May brings local elections in the UK, find out about ID’s & accessible voting. Plus, updates from the NSPKU conference, help with research.
PKU
NSPKU England 2026 conference
Updates from the NSPKU 2026 conference: Future PKU treatments (sepipapterin, kidney treatments), Home Blood Phe Monitoring, and research updates on Phenylketonuria.
Newsletter
April 2026 news
April Update; Catch up on the PKU, Brain and mental health stories behind the turbulence of March. Plus, ideas to refresh PKU food.
ShareYourStory
Share Your Story
I believe that every story matters. If you’d like to share your experience — whether funny, heartfelt, or practical — on my blog, please get in touch