Newsletter
September 2026
A new supplement, a PKU mental health course, conference dates for autumn… Plus! Help with a new routine, and 4 recipes for school night dinners.
News
Monthly updates on PKU, Brain Injury, mental health, and events at PigPen.
News
July 2026
I'm excited to introduce my new YouTube video series and share some book chapter excerpts with you all. But first, let's catch up on the latest PKU and brain injury news.
Newsletter
June 2026
June 2026 roundup: PKU news, menstruation study, rare disease advances, brain injury AMA with Dr Putrino, plus PigPen recipes & stories
Recipes
YouTube soft launch
My first YouTube video! And your feedback would mean the world to me. This is brand-new territory for me, and I want to get it right.
Newsletter
May 2026
A bumper bank holiday edition: May brings local elections in the UK, find out about ID’s & accessible voting. Plus, updates from the NSPKU conference, help with research.
Newsletter
April 2026 news
April Update; Catch up on the PKU, Brain and mental health stories behind the turbulence of March. Plus, ideas to refresh PKU food.
Welcome, start here!
Welcome to PigPen — a space for lived experience, research, and storytelling around PKU, brain injury, and mental health.
News
February 2026
A free workshop on Living with PKU; Genetic medicine, personalised treatments, and PKU; Campaigning for change in strokes and brain injury support; and What is the PKU injection (Palynziq)?
News
January 2026
Resolutions: One thing at a time! Advice for managing PKU; Celebrities and 'brain holes'?; Please help with adult research; Dates for the diary; Plus: find ALL of my Low Protein recipes.
News
Twixtmas reading, 2025
18 reading suggestions to curl up with while polishing off leftovers. The articles include PKU research and updates; Rare Disease and advocacy articles; then Brain, neurological, and mental health reading.
News
December 2025
From new breakthroughs to Christmas tips and recipes, here are the PKU and Brain stories worth knowing about in December 2025.
Conferences
NSPKU in Wales 2025
From the psychology of living with PKU to new treatment pathways and the fight for fair access, highlights from this year’s NSPKU Conference in Wales.