Brain Injury
Change and neuroplasticity
Why your brain is built for change, and what that means after trauma.
Mental health
Articles regarding mental health when living with long-term health conditions; such as PKU, Phenylketonuria, rare disease, inherited metabolic disorders, brain injury, concussion, post concussion syndrome, anxiety, TBI, ABI.
Brain Injury
Heatwaves & Brain Injury
A brain injury can sometimes cause problems with temperature regulation, making it harder for survivors to control their body temperature.
ShareYourStory
PKU, Protein, and Pressure
I’ve never struggled too much with my diet... What has affected me is the mental state the diet puts me in. The constant weighing and measure of every option before me. The anxiety of it.
News
January 2026
Resolutions: One thing at a time! Advice for managing PKU; Celebrities and 'brain holes'?; Please help with adult research; Dates for the diary; Plus: find ALL of my Low Protein recipes.
News
Twixtmas reading, 2025
18 reading suggestions to curl up with while polishing off leftovers. The articles include PKU research and updates; Rare Disease and advocacy articles; then Brain, neurological, and mental health reading.
Conferences
NSPKU in Wales 2025
From the psychology of living with PKU to new treatment pathways and the fight for fair access, highlights from this year’s NSPKU Conference in Wales.
Advocacy
RareSummit 25
My first RARESummit: What I Learned from a Day of Rare Voices. CamRARE’s 2025 event reflected on “A decade of impact. A future of possibilities”.
News
Sept 2025
News for September 2025: PKU App now free, More help for long-term conditions, New PKU podcast, Four new recipe sites to try - and much more. Subscribe today for free.
News
July 2025
July 2025 news: Men's voices in healthcare, EU approves new PKU treatment, New Books for PKU kids, & Neuroplasticity in brain injury recovery.
News
June 2025
First CRISPR treatment for a rare genetic disease, Cost of brain injury to the economy, Low-Protein recipe of the month, and much more...
News
April 2025
Packed with Easter tips, ideas for school holiday baking, new brain injury research, and a chance to report on the NSPKU conference.
Brain Injury
Living with Mild Brain Injury
“Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.” Dr Neil Parrett. Consultant Clinical Psychologist (Neurorehabilitation)