Newsletter
September 2026
A new supplement, a PKU mental health course, conference dates for autumn… Plus! Help with a new routine, and 4 recipes for school night dinners.
Brain Injury
Articles on brain injuries and recovery written from the perspective of a brain injury survivor. Content includes brain bleeds, concussion, and post-concussion syndrome.
Newsletter
August 2026
From PKU surveys to brain injury tips and recovery, including Low Protein summer salads and a book sale - here is your August roundup of what matters in the rare disease and brain injury communities
News
July 2026
I'm excited to introduce my new YouTube video series and share some book chapter excerpts with you all. But first, let's catch up on the latest PKU and brain injury news.
Brain Injury
Heatwaves & Brain Injury
A brain injury can sometimes cause problems with temperature regulation, making it harder for survivors to control their body temperature.
Newsletter
May 2026
A bumper bank holiday edition: May brings local elections in the UK, find out about ID’s & accessible voting. Plus, updates from the NSPKU conference, help with research.
Newsletter
April 2026 news
April Update; Catch up on the PKU, Brain and mental health stories behind the turbulence of March. Plus, ideas to refresh PKU food.
Newsletter
46 March 2026
Rare Disease Day Reports, PKU GI research, Low Protein Pancake recipes, brain injury app trials, and a book sale ending 7th March!
News
February 2026
A free workshop on Living with PKU; Genetic medicine, personalised treatments, and PKU; Campaigning for change in strokes and brain injury support; and What is the PKU injection (Palynziq)?
News
January 2026
Resolutions: One thing at a time! Advice for managing PKU; Celebrities and 'brain holes'?; Please help with adult research; Dates for the diary; Plus: find ALL of my Low Protein recipes.
News
Twixtmas reading, 2025
18 reading suggestions to curl up with while polishing off leftovers. The articles include PKU research and updates; Rare Disease and advocacy articles; then Brain, neurological, and mental health reading.
News
December 2025
From new breakthroughs to Christmas tips and recipes, here are the PKU and Brain stories worth knowing about in December 2025.
News
Nov 2025
AI and a golden age of medicine, more on UK Pharma, the latest in PKU treatments, new neurological rehab guidelines, and much more.