Recipes
Ginger and dark chocolate cookies
Delicious, chewy ginger and chocolate cookies with an orange hint. These are low protein and protein-free options for PKU and other restricted diets.
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Eating out with PKU
Eating out can be a challenge for those of us following a low-protein (or PKU) diet. Here are some tips and recommendations.
Writing
Low protein books
A selection of low protein books for adults and children. Gift ideas for those new to PKU and inherited metabolic disorders. Plus, a free gift for subscribers.
Newsletter
December 2024
Monthly round up includes recipes and tips for Christmas, accessing NHS prescriptions, and a reminder to bag your free copy of Mental health & PKU.
PKU at Christmas
Tips and links to help with a low protein Christmas or Thanksgiving. I’ve included PKU and low protein menu suggestions & recipes.
Recipes
Fragrant carrot soup
A low protein (possibly protein-free depending on your regime) curried carrot soup for chilly days. Makes an easy PKU meal with 10 mins prep and 30 minutes cooking time.
Ensuring prescriptions on the NHS
Challenges to our treatment regime shouldn’t happen. Sadly, this isn’t an ideal world. These questions are annoying and exhausting, and it is important to be firm and clear in your response.
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The Red Hat Stories
An enticing collection of short stories which explore the connections between strangers on the streets of London.
Conferences
Adults’ experience of PKU clinic
There was a wide discrepancy in the services which UK adults received at their PKU appointments.
Conferences
Rare Minds Workshop
The NSPKU contacted a mental health charity specialising in supporting those with rare diseases—Rare Minds.