Books
Pauline O'Connor writes about real lives shaped by rare disease and resilience, stories that turn science into understanding and action.
I write from lived experience — blending research, advocacy, and storytelling across rare diseases, brain injury, mental health, and creativity.
Whether you’re a parent managing PKU, a reader seeking inspiration after injury, or simply someone who values honest stories about coping and connection, you’ll find a book that speaks to you here.
“I'd love to read more from this author as her style is so easy to read - 5 stars!"
Low Phe ABC & Colouring books
Accessible, fun low‑protein books for kids with PKU. Full of low-protein foods.
The Red Hat Stories
An enticing collection of short stories which explore the connections between strangers on the streets of London.
“My favourite read of the year.”
Living with PKU
A low protein life with Phenylketonuria
"Completely fabulous. Brilliantly written." Suzanne Ford, NSPKU Metabolic Dietician
Living with Mild Brain Injury
The difficulties of diagnosis and recovery from post-concussion syndrome.
“Incredibly vivid… this book will be of great benefit to professionals, survivors and their families alike.”
