> ## Content Index
> Fetch the complete content index at: https://www.pigpen.page/llms.txt
> Use this file to discover other available public pages before exploring further.

# PKU Day 2026
- URL: https://www.pigpen.page/pku-day-2026/
- Published: 2026-06-26T07:00:41.000Z
- Updated: 2026-06-26T07:00:41.000Z
- Author: Pauline

Hullo there,

The **28th of June is International PKU Day**: a chance for the Low Protein community to raise awareness of Phenylketonuria and allied inherited metabolic conditions, like Tyrosinaemia.

To mark it, I am launching my YouTube channel: [youtube.com/@PaulineAuthor](https://www.youtube.com/@PaulineAuthor?ref=pigpen.page)

It is a space for practical Low Protein recipes, stories, and conversations about PKU, brain health, and low-protein living. You can [start with the welcome video](https://www.youtube.com/watch?v=wsXFhMIyaBs&ref=pigpen.page) to get a feel for what is coming.

[![](https://storage.ghost.io/c/67/5e/675e2faa-5154-4452-8625-c3fad84083c5/content/images/2026/06/Screenshot-2026-06-23-at-13.50.23.png)](https://www.youtube.com/@PaulineAuthor?ref=pigpen.page)

Pauline O'Connor YouTube channel

I am also featured on the [Beacon](https://www.rarebeacon.org/blog/beyond-the-clinic-navigating-adulthood-with-pku/?ref=pigpen.page) for Rare Disease website this week, with a blog post about navigating adulthood with PKU.

And a quick milestone note: this month marks **four years since *Living with PKU*** was published, and one year since the *Low Phe ABC* children’s book came out. You can find both on my [books page](https://www.pigpen.page/books/).

[Pauline’s books on PKU, & Brain Injury, plus fiction worksPauline writes about real lives shaped by rare disease and resilience. Stories that turn science into understanding and action.![](https://storage.ghost.io/c/67/5e/675e2faa-5154-4452-8625-c3fad84083c5/content/images/icon/pigpen-logo-tx-background-2-a756c282-2a05-45c4-8f81-6c7010dfbe92.png)PigPen | Pauline O'ConnorPauline![](https://storage.ghost.io/c/67/5e/675e2faa-5154-4452-8625-c3fad84083c5/content/images/thumbnail/Polly--head---shoulders-40cd70ac-7df6-48a3-ac44-cab8c873e33a.jpg)](https://www.pigpen.page/books/)

If you find value in my newsletters, please share them. You can [find my books](https://bookshelf.start.page/?ref=pigpen.page) at all major retailers. Your support means a lot, and your feedback shapes what comes next. Do get in touch!  
Cheers,  
Pauline

P.S. If you watch one thing, start here: [welcome video](https://www.youtube.com/watch?v=wsXFhMIyaBs&ref=pigpen.page)

Newsletter #50