Endurance training with PKU & brain injury
I’m training to walk 24 miles in one day — that is about 40 km, or 9 hours walking. This challenge is in memory of my dear friend Dara, and will take place on the first anniversary of her passing. The walk is organised by Marie Curie, a charity which provides palliative and end-of-life care in the UK. This isn’t just a meaningful tribute—it’s also a very personal challenge as someone with PKU and a history of mild brain injury.
Why This Walk Matters
Dara passed away after a long battle with breast cancer. One of the things she spoke of was her gratitude to those in her local hospice who supported her and her family through this most challenging of times. Marie Curie are a charity which provides expert care to anyone, whatever the illness.
I committed to this walk because I want to mark the first anniversary of Dara’s passing in a way that felt special to me. My friends and I chose this walk because we wish to help other people and families who are facing the end of a loved life. Walking in Dara’s name, with the blessing of her family, honours her memory and celebrates the humanity in those who care for us when we need it most.
My Real-Life Training Plan
Living with PKU means juggling the restrictions of a low-protein diet therapy with the demands of every day metabolism. Throwing in an endurance challenge means I need to double-down on ensuring I’m getting enough energy and nutrition without exceeding my protein limit. I also struggle with fatigue after brain injury, which can bring on migraines.
This means the right fuel is key to both training and walk day miles. I’m still looking for the right protein-free walking snacks — there are only so many bananas I can carry! So, any suggestions would be much appreciated
To date: my longest walk is 14 miles (ca. 23 km), which took 5 hours.
As summer progresses, I plan to take:
- Short, frequent walks to manage both physical and mental fatigue
- A small (clinic approved) increase in my PKU substitute
- more experiments with protein-free snacks and drinks
I also want to work on my expectations and allow more flexibility. If a plan collapses mid-week, I hope to see it as a regroup—not failure.
More Than Just Miles
Beyond the miles, this journey is about proving that PKU, brain injury recovery, and hope can coexist on tough days. It’s a message of persistence.
I would love your support and suggestions as I carry on training! I do monthly updates from the trail, and you can find out more at https://www.justgiving.com/page/pauline-oconnor-1.